Time for Tummy Talk

And so it continues.

We took L to a specialist at the Children’s’ Medical Center. She was a brave little girl.

The doctor examining her was wonderful, kind and explained everything to both of us, not just me.

After a very thorough examination she concluded that she was/is constipated. This is very common for what reason they don’t know.

Based on her history L just became all too familiar with the feeling and pain associated with going poop.

Whether that was a horrible reaction to something that didn’t agree with her through diarrhea or intense constipation or the fear of the unexpected explosion and the looks or feeling of embarrassment; either way something triggered this fear of going.

Her ‘accidents’ were basically overflow. She had learned to hold it to the point that the doctor could feel it during her exam both externally and internally.

She drew up blood work and the results, after a very long 3 week wait, were negative for Crones and Celiac disease so that is a relief.

Her prescription was a hard-core cleansing followed by a daily dose of Miralax for four months. We needed to fully clean out her body so she knew what an empty feeling was versus a full feeling. She had to start the process of training her body on how and when to go.

That first week was painful for her. As if she needed to lose any more weight.

Once she received a full cleanse we could start offering her lactose free foods like yogurt and mozzarella. The doctor didn’t believe she was allergic or intolerant to dairy but just the lactose.

I’m not so sure I agree. While the yogurt in small doses is settling rather well she had mozzarella and she was sick for days. It wasn’t fresh but it was pure mozzarella.

She has even started eating baked goods that include butter in their ingredients and that seems ok. She thinks doughnuts are delicious! But again it’s so hard to narrow down her incidents and what led up to them.

She wasn’t having any accidents for about a month but they have started again.

I’m not sure I agree completely with the diagnoses but I’m not sure where to go at this point. A fellow mom mentioned that milk protein allergies can look just like lactose intolerance.

I can remember clearly when she was just 2 ½ being at a pool party and she had an accident in the pool. While the host didn’t make a big deal out of it as he has children of his own and this certainly happens,  he cleaned and shocked the pool within thirty minutes but that didn’t stop a few unkind comments from others and the clear embarrassment she felt.

I think that was the real turning point. I do find it odd that at that moment we decided to cut out ALL cows dairy her accidents improved within 2 weeks.

We’re just so torn and can’t seem to find answers.

I’m extremely glad she doesn’t have any diseases they were concerned about but we still have a little girl with some serious intestinal issues.

Can anyone please shed some light on this for us?

Any advice or experiences would be huge. We are just watching her confidence diminish with each accident.

Thank you.

kids baking

Baking up some yummy healthy fats to put a little meat on her bones.

 

 

 

9 thoughts on “Time for Tummy Talk

  1. AW! Poor sweetie!! I am so sorry this is going on! I had no idea… poor girl. I remember Cass had accidents ( and i swear she had one just last year- fifth grade) when she would get constipated. It’s true what the doc said- it was always when she was backed up- that it would happen…out of her control. It was horrible for her- and I was so frustrated about it.

    She is pretty much in the clear now… so I just pray this might be it for you as far as diagnosis. Thanking GOD there are no negative test results for something serious!!

    Keep me posted, okay?

    Tell her about Cass. It may help her feel a bit bettter, and not so alone.

  2. I don’t agree with the doctor’s reco that eating mozzarella is ok. All cheeses still have some lactose in them, some might just have less than others and some lactose intolerant people can tolerate a little bit of cheese. Personally I would try cutting out all dairy completely for a while, and then slowly test adding back in just lactose free yogurt. And yogurt is only lactose free if it has cultured for a really long time. Look up “SCD legal yogurt” – that’s yogurt that has cultured long enough that all the milk sugar (lactose) has been digested by the yogurt cultures. I believe the only commercially available brand is Siggi’s, but it’s really easy to make your own. If you cut out all dairy and she seems fine, then you can test adding back in just the yogurt and I think that will tell you whether her issue is just the lactose, or whether it’s the milk protein itself. Butter is usually ok because it’s just the milk fat and doesn’t have the protein or the lactose.

    My two youngest had dairy and lactose issues when they were babies. They were both lactose intolerant (I had to grind up lactaid pills into a solution and put it in their mouths with a dropper before I could even breastfeed them, because human milk has more lactose in it than any other kind of milk). And one also was sensitive to milk protein, even without the lactose. If I had even the tiniest bit of dairy it would get through in my milk and she would scream and scream in pain. It was awful. They fortunately grew out of it and have no problems now, but in the process I read and learned a ton about milk sugars and proteins.

    • We started slow with cutting out lactose which seemed to help. then she got bad again so at 2 1/2 we cut out all dairy including butter and she cleared up within 2 weeks and life seemed in control. But now (she is just 6) she is having issues again and it’s been for the last 6-12 months that the issues have started again. So I was thinking maybe whey? isn’t that the milk protein. (butter does bother her unless it’s cooked like in breads). I just don’t know. She is so tiny. She has a great appetite and luckily navigates towards veggies and fruits but something is still going on.

  3. Ask about Hershbrungs disease. I know someone who almost died. He was an adult and had been “cleaned” out a few times. It’s a disease where a piece of your intestine fails to work so everything gets blocked up behind that part. If caught young enough it’s not so complicated to fix. If left untreated it could cone down to colostomy bags and worse. Hopefully this helps

Leave a Reply to Lisa Cancel reply

Your email address will not be published.